STATEHOUSE (Aug. 29, 2025) – Gov. Mike Braun recently ceremonially signed into law a bill authored by State Rep. Kyle Pierce (R-Anderson) to strengthen privacy protections for consumers using genetic testing services.
House Enrolled Act 1521 requires genetic testing providers, such as 23andMe and LifeDNA, to obtain consent before using or sharing an individual's genetic data and prohibits providers from sharing identifying information with insurers and employers.
In the wake of 23andMe's Chapter 11 bankruptcy filing in March, the company sought a sale of its assets, including the mass collection of customers' genetic data. Pierce said this prompted concerns about data privacy, with customers being encouraged to delete their data and request destruction of samples.
"Hoosiers should never have to worry about their most personal information being used against them," Pierce said. "This law sets clear safeguards for genetic data and ensures consumers remain in control of their privacy. Protecting data and sensitive information is critical when building trust in these technologies."
Pierce said the new law mandates providers to disclose specific information to consumers who submit biological material for genetic testing, like how it's collected, used and protected. It also prohibits these companies from sharing genetic data with insurers, data brokers or employers. Any data shared with third-party entities can't include identifying data like names and addresses so that it cannot be used against the consumer. Examples include raising their insurance rates, limiting their coverage amount or denying their application.
HEA 1521 received strong bipartisan support in both chambers during the 2025 legislative session. To learn more, click here.
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State Rep. Kyle Pierce (R-Anderson) represents House District 36,
which includes a portion of Madison County.
Click here to download a high-resolution photo.
PHOTO CAPTION: State Rep. Kyle Pierce (R-Anderson) (second from left) joins Indiana Gov. Mike Braun (seated), State Rep. Matt Commons (R-Williamsport) (far left) and State Sen. Andrea Hunley (D-Indianapolis) (second from right) for a ceremonial signing of his legislation to protect consumer genetic data on Wednesday, Aug. 27, 2025, at the Statehouse in Indianapolis. Additional advocates were also in attendance.
